Something’s gotta give…

… don’t worry it’s not too serious, just crazy time management for the forseeable!

Regular visitors may recall that I’ve already posted about a new ‘fun’ factor in my daily routine (I’m SICK of being sick!) Since then, things kind of ambled along with the new medication, with only a few botty slips of short duration. So, I went off last Friday to Gastroenterology Outpatients with a fairly sanguine* hope that I was doing OK with the meds and could carry on with a similar schedule (with tweaks and variations on the steroids I was taking). And therein lies the rub – I’ve been experiencing some thankfully low-key side effects from the steroids with a mostly bearable tremor in the hands. I’m fairly good on the keyboard, but the shakes are interfering with putting on make-up. This isn’t a huge problem as I rarely wear it, but I’ve got to the stage where I’m contemplating going over to false eyelashes to avoid spearing myself in the eye with a mascara wand!

Consequently, this will have an impact on my tentative online scheduling wishlist from the I’m SICK of being sick! post to cut it down a few pegs, from

my souped-up ‘must have’ schedule for the rest of 2018!

  • more community-time
  • more ‘editorial’ activity with DreamWorlds Publishing
  • making time to get back into actually writing the Haven Lands series and not just thinking about it…
  • getting off my arse and start the editorials for The Qworks anthology – this is now festering way too much and needs some TLC, not to mention massive ICU attention

to something more realistic and tailored daily, especially for the rest of this month, but also long-term as living with IBD is more complex than I thought at first.

So it’s back to the drawing board for fantasy time scheduling of my vital online activity along these lines…

All of the above wishlist items will now be governed by the following fluctuating conditions –


  • experiencing adverse colon activity overnight (don’t need to draw you a picture of that…) resulting in exhaustion and extreme need for more sleep
  • energy levels for above previous scheduling limiting my ability to concentrate on serious writing and editing tasks, including but not limited to, brain-fog, lethargy/apathy for doing anything worthwhile and/or inability to rise from my bed, or need to be within a few steps of the bathroom
  • not having workmen or sales-people around for home improvement projects, which now has a filter for
    • going on eBay et al to flog stuff to pay for all of that…

#3 is the one that’s going to have the most impact on my online activity this week and next, as my bedroom’s being torn down and replaced. Which has forced me to face up to the inevitable – I can no longer count on being able to multi-task or juggle with various activities too well anymore. I hope that this will mean that listening to my body and it’s physical and mental status each day will help me to do what I can, when I’m best equipped to, on any given day.

Since Xmas when ‘the embuggerance’ raised it’s hoary head, I’ve been allowing myself a ‘surfacing’ period of about 2 hours so that my body can wake up gently and, if I’m needing the bathroom a lot in that time, I scale down on what I do when I can get up (or not) to dictate what I’m doing. However, this doesn’t always work out too well if I’ve had a bad night (I still get insomnia a lot), so even if the embuggerance hasn’t kicked in I might might be OK physically, but my head’s still in another foggy place and I find myself zoning out, or making stupid errors and losing my train of thought and/or track of time.

That’s why I’m going to have to re-jig a lot more on a daily basis so I optimise my time as required with what I’ve got going on that day.

So… sorry that there’ll be some days when I’m not about so much, but I hope to at least get to my email and blog surfing most days so I’ll still be vaguely visible! 😀 The good news is that once the bedroom’s re-vamped, I’ll be able to use the laptop more, so if I do get confined to the bedroom and easy-access to ensuite facilities for the day, I can still stay in touch! 😉

still in touch with the world – come what may! 🙂

* Sorry – Emma’s on the TV and I’m channelling Austenesque worship like mad… 😛

17 thoughts on “Something’s gotta give…

  1. Oh now, Ms. Hawke … behave yourself, girl. We have far too much in common as it is, lols. … Seriously, though, I’m sorry to hear you’re still suffering like this. It’s no fun. Feel better soon, honey. And you’re doing the right thing … sometimes, we just have to retreat in order to advance. Love and hugs x 🙂

    Liked by 1 person

    • ROFL! ❤ Thanks, Harmz – and yes, owning up to feeling below par and not being able to do as much as I'd like is all part of adjusting to how to handle the 'embuggerance' long-term. I'm also buoyed up today as the installation of the new bedroom's been confirmed and starts next Monday! 😀

      Liked by 1 person

    • Hi, Ronnie! 😀 I’m feeling a lot better for facing up that this is going to be a long haul experience, but I am also relieved that I won’t be taking steroids for the time being at least. Thanks for your kind words 🙂

      Liked by 1 person

    • Thanks, Jan! 😀 The spirit is willing the majority of the time, but a bad night or morning leaves me more shattered than I was prepared to admit and I’m finding that I’m making really stupid mistakes or decisions – like driving for even relatively short journeys when I’m feeling slightly fuzzy.
      It’s a learning curve while I adjust to the condition (it’s manageable, but I want to avoid moving into surgical solution territory), which I’m stuck with even if the new (very strong) meds work out OK. 😐 With mates like you about it really makes a difference! 😉

      Liked by 2 people

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